The Canadian Hemophilia Society (CHS) is reminding MyCBDR users to take part in the PROBE survey, a short, patient‑designed questionnaire that helps capture the real‑world experiences of people living with […]
A new study from Japan is shedding light on how often boys and young men with hemophilia can safely participate in sports, and why early adolescence may be a particularly […]
Researchers at the University of Rochester are interested in creating a patient-reported outcome measure that will assess the health, symptoms, and disease burden of individuals with von Willebrand disease. The […]
Hemophilia Ontario has submitted a formal letter to provincial health decision‑makers in alignment with the recent efforts of the Canadian Hemophilia Society, asking the province to accept the Canadian Blood […]
SickKids has been named the world’s best children’s hospital, topping Newsweek’s global ranking of 250 pediatric centres. The recognition reflects the hospital’s extensive specialized programs, groundbreaking research, and its role […]
BioMarin has announced that it is pulling Roctavian, its gene therapy for adults with severe hemophilia A, from the market. The company reported that demand for the therapy remained far […]
Give 2 hours. Make a local impact. Hemophilia Ontario is proud to be a licensed charity partner at Superior Shores Gaming Centre (435 Memorial Avenue, Thunder Bay) and we’re looking […]
The Ontario Ministry of Health has announced that the Ontario Hepatitis C Assistance Plan (OHCAP) will be winding down after nearly 30 years of providing equitable access to hepatitis C […]
The Canadian Hemophilia Society has announced an important evolution: a new national name—Bleeding Disorders Canada. This change reflects the growth and diversity of the bleeding disorders community and aims to […]
The World Health Organization (WHO) Executive Board has endorsed a new resolution aimed at closing major gaps in care for people with hemophilia and other bleeding disorders. The resolution highlights […]
