Ontario has approved access to HEMGENIX, the first gene therapy for people with hemophilia B. British Columbia has also opened access, while other provinces continue their reviews. Because HEMGENIX is […]
An explainer from CSL examines why hemophilia B came to be known as Christmas disease, a name rooted in medical history rather than the holiday itself. The condition was first […]
A recent study highlighted in Hematology Advisor explores how hemophilia impacts health related quality of life in children, focusing on both physical symptoms and broader emotional and social effects. While […]
A 2019 study led by McMaster University revealed that hemophilia is about three times more prevalent than previously estimated, affecting more than 1.1 million men worldwide. Many cases remain undiagnosed, […]
I am a hemophiliac. I say that plainly, because for a long time I couldn’t. For years, my bleeding disorder was something I wanted to neglect. I hated what it […]
We are excited to invite you to our Annual General Meeting, taking place on Saturday, April 25th!
The Canadian Hemophilia Society (CHS) is reminding MyCBDR users to take part in the PROBE survey, a short, patient‑designed questionnaire that helps capture the real‑world experiences of people living with […]
A new study from Japan is shedding light on how often boys and young men with hemophilia can safely participate in sports, and why early adolescence may be a particularly […]
Researchers at the University of Rochester are interested in creating a patient-reported outcome measure that will assess the health, symptoms, and disease burden of individuals with von Willebrand disease. The […]
Hemophilia Ontario has submitted a formal letter to provincial health decision‑makers in alignment with the recent efforts of the Canadian Hemophilia Society, asking the province to accept the Canadian Blood […]
