Ontario Hepatitis C Assistance Plan (OHCAP) to Sunset in 2026

The Ontario Ministry of Health has announced that the Ontario Hepatitis C Assistance Plan (OHCAP) will be winding down after nearly 30 years of providing equitable access to hepatitis C compensation. According to the Ministry, “the program has achieved its goal with strong uptake for nearly 30 years” and is now being responsibly closed as applications have steadily declined.

Individuals who may be eligible for compensation are strongly encouraged to review the timelines and application requirements as soon as possible. The Ministry notes that all applications must be submitted by June 30, 2026, and that processing “may take over 12 months, depending on the availability of hospital and transfusion records.” Continue reading


CHS Unveils New National Name: Bleeding Disorders Canada

The Canadian Hemophilia Society has announced an important evolution: a new national name—Bleeding Disorders Canada. This change reflects the growth and diversity of the bleeding disorders community and aims to ensure that everyone living with inherited bleeding disorders sees themselves represented. The mission and vision remain unchanged, with continued focus on advocacy, safety, comprehensive care, and research. Continue reading


WHO Advances Global Resolution to Improve Hemophilia Care

The World Health Organization (WHO) Executive Board has endorsed a new resolution aimed at closing major gaps in care for people with hemophilia and other bleeding disorders. The resolution highlights the global reality that bleeding disorders remain widely underdiagnosed and undertreated, with more than 70% of affected individuals lacking adequate access to therapy. It also emphasizes that women and girls face additional barriers due to stigma, limited awareness, and inconsistent clinical recognition. Continue reading


CHS Calls on Provinces to Approve Altuviiio for Hemophilia A Treatment

The Canadian Hemophilia Society (CHS) has formally asked the Provincial/Territorial Blood Liaison Committee to accept Canadian Blood Services’ recommendation to introduce Altuviiio (efanesoctocog alfa) for people with hemophilia A. Health Canada approved the therapy earlier this year, and national assessments have supported its clinical value. Phase 3 studies show that once‑weekly Altuviiio offers superior bleed protection, near‑normal factor VIII levels, and improvements in pain, joint health, and overall physical well‑being. Continue reading


Connection and Camp – Luke’s Story

For a long time, I didn’t think much about what shaped the way I live with hemophilia.

I grew up learning how to manage my bleeding disorder in hospitals, emergency rooms, and infusion chairs. I learned to find a vein before most kids learned their multiplication tables. I missed school because of bleeds, sat out of gym class, and learned early how to explain to others that no, that paper cut won’t be the end of me.

For a long time, that was just normal. Continue reading


Strengthening Canada’s Supply of Lifesaving Plasma Medicines

Canadian Blood Services is pushing to strengthen Canada’s self‑reliance in plasma‑derived medicines. Demand for immunoglobulins continues to rise, yet most of Canada’s supply still comes from the United States. CBS outlines a national strategy to expand plasma collection, build Canadian manufacturing capacity, and reduce reliance on foreign supply chains. The goal is long‑term stability and improved self‑sufficiency for patients who depend on these lifesaving therapies. Continue reading


Register for YAMP Winter 2026!

Winter YAMP 2026 ❄️
Brace for impact — we’re heading back into the cold.

Join us Friday, Jan 30th to Sunday, Feb 1st at YMCA Ki-Wa-Y in St. Clements for a weekend of connection, adventure, and the kind of winter chaos only YAMP can pull off.

What’s YAMP?
Youth Adventures & Mentorship Program is our leadership and community-building program for high school youth in the Hemophilia Ontario community. It’s where friendships get stronger, confidence grows, and everyone gets a chance to push themselves in a way that actually feels good.

Register Here


Education Session: Hemophilia in Adulthood – Joint Surgery, Orthopedics & Treatment Advances

 

December 18th, 2025 • 11:00am–1:00pm
Location: St Michaels Hospital                      La Ki Shing Building, Toronto

Adults living with hemophilia often face unique joint and mobility challenges as they move through adulthood. From joint replacements and fusions to evolving treatment options, the landscape of care continues to shift — and staying informed can help you make confident decisions about your health.

Join us for an in-depth education session led by healthcare professionals with expertise in adult hemophilia care. This event is designed to provide clarity, practical guidance, and space for discussion.

What You’ll Learn

  • When joint replacement or fusion may be recommended

  • What to expect before, during, and after orthopedic surgery

  • Physiotherapy considerations for long-term joint health

  • New and emerging treatments, including gene therapy and product advancements

  • How to prepare for aging with a bleeding disorder while maintaining mobility and quality of life

Who Should Attend

This session is designed for adults living with hemophilia or other inherited bleeding disorders who are navigating joint-related issues as they age or want to learn more about future treatment options into later adult life.