Prisoners’ Justice Day – August 10, 2023

Posted on , updated on by Hemophilia Ontario

 

Prisoners’ Justice Day

August 10, 2023

 

We are in solidarity with imprisoned community members across Ontario and beyond for Prisoners’ Justice Day 2023 to draw attention to:

1) The alarming and inhumane deaths that are increasing behind the bars of our prison systems

2) The disproportionate rate of HIV and HCV impacting imprisoned community members

3) The abusive treatment towards imprisoned people

4) Community activism initiatives that support imprisoned people and are working to end imprisonment as a response to social problems

5) The need for accountability and transparency from governing bodies

 

Community initiatives you can learn from and support:

  • P4W Memorial Collective Go Fund Me Donation Drive @p4wmemroialcollective.com
  • Rittenhouse: A New Vision @rittenhouseanv.com
  • PASAN @pasan.org
  • Criminalization and Punishment Education Project @cp-ep.org
  • Community Justice Initiatives @cjiwr.com

 

#PJD2023

#PrisonersJusticeDay

#NoMoreDeathsInCustody

@Rittenhouse.anewvision

@prisonharmreduction

@ajustcommunity

@hivlegalnetwork

@migrantworkeralliance

@migrantrights

@migrantrightsarehumanrights

#migrantsexworkerjustice

#statusforall

@cpepgroup

#WomenandHIV 

#radicalcommunity 

#HIVAwareness 

#HIVPrevention 

#HIVCare 

#HIVPreventionforWomen 

#SexualHealth 

 

 

 

An Incredible Expedition!

Posted on by Hemophilia Ontario

On Friday, June 30, Maia Meier and Craig Upshaw, longstanding CHS volunteers, began their climb to the top of Mount Kilimanjaro…

 

‘Both Maia and Craig experience complications of living with an inherited bleeding disorder but thanks to perseverance and innovations in treatment, they have trained and prepared to reach the summit.

 

In recognition of the challenges that women with inherited bleeding disorders face in receiving a diagnosis and timely treatment, Maia and Craig are asking you for your help to support CHS programs.

 

The mental and physical effort it must have taken them to succeed in their endeavour is a testament to the resilience and courage of the bleeding disorder community.’

 

Hemophilia Ontario is challenging you, our members, to help celebrate Maia and Craig’s quest to reach new heights and support the Canadian Hemophilia Society this month.

 

To learn more about their adventure and to show support for the incredible feat that has been accomplished, please consider donating to CHS to achieve their objective if you are able. If you are not in a position to do so, please consider sharing their story with your communities. Congratulations again, Maia and Craig!

 

DONATE TODAY!

 

 

Just the Dads Camp Registration!

Posted on by Hemophilia Ontario

We are thrilled to announce the upcoming Just the Dads camp, a weekend overnight experience designed specifically for children ages 4-17 affected by an inherited bleeding disorder and their accompanying father/male role model ages 19+ happening from September 15th to 17th. It’s a unique opportunity for dads and their children to bond, learn, and connect with other families facing similar challenges.

 

During this unforgettable weekend, participants will embark on a Star Wars-themed journey, discovering the force within themselves while forging stronger family connections. The Just the Dads camp features a series of education sessions, engaging activities, and group events tailored to create an enriching experience for both dads and children.

 

Highlights of the Just the Dads camp include:

 

Educational sessions to deepen your understanding of your child(ren)’s diagnosis

Fun and interactive Star Wars-themed activities

Opportunities to connect with other families who share similar experiences

Workshops focused on living safely and well with a bleeding disorder

Don’t miss this fantastic opportunity to create lasting memories and build a support network within the Hemophilia Ontario community.

 

To secure your spot at the Just the Dads camp, please visit our sign-up page and REGISTER HERE

 

May the force be with you as we embark on an exciting Star Wars adventure together at Just the Dads camp!

 

 

Research Opportunity

Posted on by Hemophilia Ontario

Are you a person with von Willebrand disease (VWD) or Caregiver of someone with VWD?

 

Join a Canada-wide conversation to address your needs and support new treatment options. YolaRX Consultants, a research organization in epidemiology, on behalf of Takeda Canada Inc., is currently seeking participants for an online research study registered on ClinicalTrials.gov (NCT05695560)

 

What’s Involved?

  1. Online survey with questions about yourself as someone living with/caring for someone with VWD (~20 minutes)
  2. Telephone interview with a research nurse to learn about the impacts of VWD on your daily life as well as your treatment needs (~30 minutes)
  3. Optional participation in a small virtual focus group with other peers (~60 minutes)

 

Who We’re Looking For: Patients and caregivers residing in Canada

 

Patients:

  1. a) 18 years of age or older
  2. b) Diagnosed with von Willebrand disease with a Self-BAT score of 10 or higher (don’t know your score? Click here to take the test).
  3. c) Received Humate-P®or Wilate® at least once in the last 5 years

 

Caregivers for someone with von Willebrand disease who has a Self-BAT score of 10 or higher.

 

Interested?

Visit the following link to find out if you’re eligible: https://www.surveymonkey.com/r/screening_preselection

 

Questions about the study?

Click here to learn more. You may also email the YolaRX research team at studystaff@yolarx.com or call (514) 900-4858 for more information.

 

Please note that the information you provide throughout the study will remain strictly confidential. You may participate in French or in English. No compensation will be provided, but your participation will get your voice heard on the current standard of care and open the door to new therapies in Canada.

 

*This study is not connected to Hemophilia Ontario.

 

Research Opportunity

Posted on by Hemophilia Ontario

Are you a person with von Willebrand disease (VWD) or Caregiver of someone with VWD?

Join a Canada-wide conversation to address your needs and support new treatment options. YolaRX Consultants, a research organization in epidemiology, on behalf of Takeda Canada Inc., is currently seeking participants for an online research study registered on ClinicalTrials.gov (NCT05695560)

 

What’s Involved?

  1. Online survey with questions about yourself as someone living with/caring for someone with VWD (~20 minutes)
  2. Telephone interview with a research nurse to learn about the impacts of VWD on your daily life as well as your treatment needs (~30 minutes)
  3. Optional participation in a small virtual focus group with other peers (~60 minutes)

 

Who We’re Looking For: Patients and caregivers residing in Canada

 

Patients:

  1. a) 18 years of age or older
  2. b) Diagnosed with von Willebrand disease with a Self-BAT score of 10 or higher (don’t know your score? Click here to take the test).
  3. c) Received Humate-P®or Wilate® at least once in the last 5 years

 

Caregivers for someone with von Willebrand disease who has a Self-BAT score of 10 or higher.

 

Interested?

Visit the following link to find out if you’re eligible: https://www.surveymonkey.com/r/screening_preselection

 

Questions about the study?

Click here to learn more. You may also email the YolaRX research team at studystaff@yolarx.com or call (514) 900-4858 for more information.

 

Please note that the information you provide throughout the study will remain strictly confidential. You may participate in French or in English. No compensation will be provided, but your participation will get your voice heard on the current standard of care and open the door to new therapies in Canada.

 

Deadline to participate: April 30, 2023

 

 

John Plater Scholarship and Bursary Program – Deadline to Apply Extended to May 7th!

Posted on , updated on by Hemophilia Ontario

Deadline to Apply Has Been Extended to May 7th!

Hemophilia Ontario invites anyone with a bleeding disorder who is attending a post-secondary institution to apply for the John Plater Scholarship and Bursary Program. Hemophilia Ontario awards one scholarship in the amount of $8000 available to Ontario residents, and three bursaries in the amount of $3000 available to all Canadian residents.

To read more about the scholarship and bursaries please visit:  https://www.hemophilia.on.ca/programs/john-plater-scholarships/ . To apply for the John Plater Scholarship, please fill out the application HERE.

Our scholarship and bursary program is named in honour of John Plater, a tireless advocate for people with bleeding disorders and those who were affected by the tainted blood tragedy. John had severe hemophilia A and contracted HIV from tainted blood. He passed away in the prime of his life due to complications from AIDS. John was a tireless advocate whose work led to the establishment of the Krever Inquiry and compensation for those who were infected with HIV/AIDS and Hepatitis C. John graduated from Osgoode Hall Law School in 1998, and maintained a legal practice assisting those affected by the tainted blood tragedy.

John was a mentor, friend, leader and hero to many in the bleeding disorders community. This program recognizes and celebrates John’s commitment to education, our community and to helping others.

 

The Benefits of Giving Include Tax Credits

Posted on by Hemophilia Ontario

By Avital Pitkis Contributors Peter Zhang

It’s Tax Season again!

Causes close to heart often need nothing in return when it comes to giving. However, there are also many personal incentives to donate and as we dive into tax season, one consideration to keep in mind are the charitable tax credits.

Each year, Canadians are eligible for charitable tax credits from both federal and provincial governments for any donations made to registered charities in the previous year or unclaimed donations for the previous years. These credits can be used to obtain tax refunds on taxes owed.

You can read the full article HERE.