Peer Support Update

If you have applied to either become a mentor or have applied seeking membership, or are a member of our community who’d like to participate, we want to hear from you! As part of the program launch, we recognize that sharing your medical journey and experiences can seem a little daunting. But what are appropriate boundaries to set when sharing experiences and products, treatments and other resources that may have worked for one person, and you’re curious about? What are the questions you should ask your physician before implementing changes in your current treatment? And what kind of perspective should you hold about your experiences and the experiences of those around you? We are here to answer your questions and address concerns you may have entering in to our Peer Support Network and outline some rules and regulations in terms of how the program will operate, as well as setting expectations of both mentors and those being mentored. We will be having a webinar featuring one of our lovely Hemophilia nurses, Vanessa Bouskill to help in this effort and ensure everyone is on the same page prior to beginning introductions with those paired together.

Please note, we will be following up next week with a confirmed webinar date and time and want to remind all our members who are interested in this topic that they are more than welcome to attend if they’re curious or would like to hear more about this topic.

Please submit any questions or concerns via the typeform link below. All questions will be anonymous.

Survey: https://hemophiliaontario.typeform.com/to/pu97mN3b

 

 


Community Camp & AGM Weekend

 

SPACES FILLING UP QUICKLY!
Community Camp & AGM Weekend
at the Marriott Fallsview Hotel & Spa
May 5 – 7, 2023

 

GET READY!

Registration for our Community Camp & AGM Weekend in conjunction with the Canadian Hemophilia Society’s Rendezous weekend in Niagara Falls is now open! 

Registration is on a first come, first paid, basis, so be sure to sign you and your family up early as spaces are limited. Payment can be made by contacting Susan Turner at 1-888-838-8846 ext. 11.

Thanks and we’re really excited to see you in May!

 REGISTER NOW!

The Hemophilia Ontario Team

 

 


Youth Adventures and Mentorship Program

 

The Youth Adventures and Mentorship Program (YAMP) is designed to provide high school youth affected by bleeding disorders with a platform to connect, learn, and grow alongside their peers. This program focuses on fostering a sense of community, leadership skills, and personal development. Through a series of engaging activities, educational sessions, and team-building exercises, YAMP aims to empower youth to navigate their unique challenges and transition into adulthood with confidence and resilience.

Check out photos from our January 2025 Event!

Please email Luke Chasse, Camp Program Coordinator for further details and Questions.

LChasse@hemophilia.on.ca
1-905-522-2545

 

Register for Winter 2026 Below!





Paid Interview Opportunity: Spaces Still Available

 

Hemophilia Ontario is conducting a gaps analysis to better understand the data from our 2020 needs assessment and also to support our 2023-2025 strategic plan.

We are currently looking for:

2 Hemophilia A patients
3 Hemophilia B patients
2 VWD patients

To be part of a 60-90 minute interview. Participants will be paid $100 for their feedback and time, and must be 18 years of age or older.

If you meet the criteria above and are interested in participating, please contact Byron James, Executive Director at

bjames@hemophil​ia.on.ca.

 


Patient Speaker Needed!

 

Hemophilia Ontario is looking for a patient with Hemophilia B to be part of a webinar presentation that meets the following criteria:

  • Hemophilia B patient who has been switched from a standard half-life product in the last 4 years
  • Willingness to share their experience with strong presentation skills
  • Someone who can share their story in an emotional and knowledgeable manner
  • 18 years of age or older

 

If you meet the criteria above and are interested in participating, please contact Byron James, Executive Director at

bjames@hemophil​ia.on.ca.

 


Study to Trace Onset of Inhibitors in Babies with Severe Hemophilia A

 

by Lindsay Shapiro, PhD | October 19, 2022

The National Institutes of Health (NIH) is supporting a university’s research into the risk factors and underlying mechanisms involved in the development of neutralizing antibodies, or inhibitors, against replacement therapies in people with hemophilia A.

The $6.6 million, three-year grant from the NIH’s National Heart, Lung, and Blood Institute comes with the possibility of additional funding for a proposed four-year second phase of this study.

Continue reading the article here.