A World Hemophilia Day message from us to you!
Don’t forget to share your photos & videos with us so we can share them too!
A World Hemophilia Day message from us to you! Don’t forget to share your photos & videos with us so we can share them too!#WHD2020 #WeAreInThisTogether #WorldHemophiliaDay
Posted by Hemophilia Ontario on Friday, April 17, 2020
#WHD2020 #WeAreInThisTogether #WorldHemophiliaDay
In alignment with the City of Toronto’s statement on March 31, 2020, it is with a heavy heart that the AIDS Vigil committee has announced the cancellation of The AIDS Candlelight Vigil that was scheduled to take place in June 2020 at Barbara Hall Park.
For more information, please visit the 519 website at: https://www.the519.org/programs/aids-memorial-and-vigil
Annual General Meeting
Hemophilia Ontario’s Annual General Meeting will be held on May 23, 2020 in a video teleconference format. Formal details will be provided in the formal notice of the meeting package.
World Hemophilia Day
Help us celebrate World Hemophilia Day!
World Hemophilia Day is an international awareness day for Hemophilia and other bleeding disorders. It is celebrated on April 17 each year, which was the birthday of Frank Schnabel, the founder of the World Federation of Hemophilia.
Ways you can get involved:
1. Tell us how hemophilia impacts your life. What challenges do you face? What has helped you? Share your story on our Facebook page www.facebook.com/HemoOntario. Use the hashtag #worldhemophiliaday
2. Share and post your story to your own social media pages and ask your followers to repost your story on their social media.
Let’s make this year’s World Hemophilia Day a great one! The countdown is on!
COVID-19 Message from the Canadian Hemophilia Society – March 31, 2020:
The Canadian Hemophilia Society (CHS) has been following the rapidly evolving COVID-19 crisis and is updating our community regularly via our various communication channels. We recognize that people with bleeding disorders and their caregivers may have questions related to their health care and treatment products.
To read the latest update from the CHS, please visit: bit.ly/CHSmessage-COVID19.
COVID-19 Update from Novo Nordisk:
During the COVID-19 pandemic, our commitment to patients, our employees and the communities where we operate remains unchanged. We will continue to supply our medicines to people living with diabetes and other serious chronic diseases, safeguard the health of our employees, and take actions to support doctors and nurses as they work to defeat COVID-19.
To read the latest update from Novo Nordisk, please visit:
https://www.novonordisk.ca/contact-us/coronavirus-updates.html
COVID-19 and Bleeding Disorders Webinar offered by The World Federation of Hemophilia:
To find out more information about this Webinar that is scheduled on Zoom on April 9th at 10am please visit:
WFH Webinar on Bleeding Disorders and COVID-19
Stay Safe and Healthy!
As we continue to monitor the COVID-19 outbreak in Ontario, the rest of Canada and around the world, we understand the uncertainty that it may bring to our community. We know that first on your mind is the health and safety of you, your family, and others around you. We are here for you during this challenging time and we encourage you to reach out with any questions or requests for member support. We take our responsibility to you seriously and are here for you if you need us.
We would like to take this opportunity to update you about Hemophilia Ontario’s operations, and what you can do to help yourself and your family.
For support or questions related to inherited bleeding disorders contact Bojan Pirnat by phone at 647-354-5660 or by email at bpirnat@hemophilia.on.ca.
For administration, contact Susan Turner by phone at 416-972-0641 or by email at sturner@hemophilia.on.ca.
For any other questions or concerns related to Hemophilia Ontario’s operations contact Byron James by phone at 705-690-4605 or by email at bjames@hemophilia.on.ca, or Cameron Peters by email at President@hemophilia.on.ca.
We strongly suggest that anyone who maintains a stock of factor at home ensure that they have a minimum of several weeks’ worth of factor on hand.
Our understanding is that there is no additional health related risk from COVID-19 for individuals with inherited bleeding disorders.
If you are immunocompromised, have inhibitors or have other serious medical issues you should take care to avoid exposure to others who are sick, especially those with fever and/or a cough. You should be in contact with your doctor to discuss additional precautions.
If you, or a family member, need to attend a hospital, consider taking as few family members with you as possible. We encourage you to follow the recommendations made by provincial and federal health authorities.
All personal medical questions should be directed to your hemophilia treatment centre.
Our in-person AGM and World Hemophilia Day events in Hamilton on April 17 and 18, 2020 are cancelled. The Board of Directors is exploring the possibility of holding a virtual AGM. We will be in contact with you when a decision is made.
All planned programs and events remain set to go ahead. At this time, we are planning to run our child and family camps in the summer and fall as scheduled.
Hemophilia Ontario is operational during this situation with no foreseen disruption to member support and services. All of our staff has the ability to work from home so there will be no interruption to our operations.
Local public health units http://www.health.gov.on.ca/en/common/system/services/phu/locations.aspx
Public Health Ontario
Public Health Agency of Canada
https://www.canada.ca/en/public-health.html
Additional Message from Hemophilia Canada
Message concernant COVID-19
Message Regarding COVID-19
We will continue to monitor this situation and provide updates moving forward should circumstances change. Please do not hesitate to reach out to us with any questions or concerns.
Cameron Peters President
Byron James Executive Director
Get +Involved! Come join us at the Art Gallery of Hamilton for a Cocktail Reception in honour of the 30th Anniversary of World Hemophilia Day! We will take a look back at the last 30th years and explore how to look forward for the next 30 years. HOW? By getting involved!
When: Cancelled
Where: Cancelled
What’s happening: Enjoy an evening with us in the Jean and Ross Fischer Gallery for a Cocktail Reception and a tour of the Art Gallery. Click on the link to explore all that the Art Gallery of Hamilton has to offer: https://www.artgalleryofhamilton.com/ Enjoy a special presentation regarding our planned giving program and how you can GET INVOLVED!
Keynote Speaker: Nicholas Arnold – Nicholas is an accomplished entertainer and award-winning filmmaker, philanthropist and writer. His early career began while still in high school, motivating hundreds of youth to fundraise over $35,000 for The Canadian Cancer Society, $2000 for The Muscular Dystrophy Association and creating a movement against bullying and youth violence through a feature film made entirely by teenagers. Click on the link for a sneak preview of what Nicholas has to offer https://www.imnicholasarnold.com/speaking
You must register to attend this special event!
Tickets $50 in advance $55 at the door
Tickets include admission to the Art Gallery, a selection of delicious horderves, a tour of the gallery and a great opportunity to hear Nicholas Arnold speak! A selection of alcoholic beverages available to purchase.
Contact Natalie Philbert if you have any questions – nphilbert@hemophilia.on.ca or 1-888-838-8846 ext. 18.
