Are you a person with von Willebrand disease (VWD) or Caregiver of someone with VWD?
Join a Canada-wide conversation to address your needs and support new treatment options. YolaRX Consultants, a research organization in epidemiology, on behalf of Takeda Canada Inc., is currently seeking participants for an online research study registered on ClinicalTrials.gov (NCT05695560)
What’s Involved?
- Online survey with questions about yourself as someone living with/caring for someone with VWD (~20 minutes)
- Telephone interview with a research nurse to learn about the impacts of VWD on your daily life as well as your treatment needs (~30 minutes)
- Optional participation in a small virtual focus group with other peers (~60 minutes)
Who We’re Looking For: Patients and caregivers residing in Canada
Patients:
- a) 18 years of age or older
- b) Diagnosed with von Willebrand disease with a Self-BAT score of 10 or higher (don’t know your score? Click here to take the test).
- c) Received Humate-P®or Wilate® at least once in the last 5 years
Caregivers for someone with von Willebrand disease who has a Self-BAT score of 10 or higher.
Interested?
Visit the following link to find out if you’re eligible: https://www.surveymonkey.com/r/screening_preselection
Questions about the study?
Click here to learn more. You may also email the YolaRX research team at studystaff@yolarx.com or call (514) 900-4858 for more information.
Please note that the information you provide throughout the study will remain strictly confidential. You may participate in French or in English. No compensation will be provided, but your participation will get your voice heard on the current standard of care and open the door to new therapies in Canada.
*This study is not connected to Hemophilia Ontario.
