Hemophilia Ontario Stickers
Celebrate World Hemophilia Day with Us! We’ve created a special set of Hemophilia Ontario–themed stickers to mark World Hemophilia Day — featuring our programs, our community, and the spirit of […]
Author: Hemophilia Ontario
Hemophilia Ontario in the Thunder Bay News!
Nicole Kowal spoke about the impact of Bombardier Blood and the importance of community support. Don’t miss our Thunder Bay screening this Friday — a powerful film and an even […]
Board of Directors Nominations Now Open – Due Before the AGM
Hemophilia Ontario is committed to improving the quality of life for people living with inherited bleeding disorders through advocacy, education, and support. Our Board of Directors plays a vital role […]
Thunder Bay Screening of Bombardier Blood – Community Fundraiser
Bombardier Blood follows mountaineer Chris Bombardier, who lives with severe hemophilia B, as he travels to Nepal and attempts to summit Mount Everest. Filmed by hemophiliac filmmaker Patrick James Lynch, […]
What Clinical Teams Are Learning as Gene Therapies Move Into Real‑World Care
A recent discussion at the HOPA Annual Conference highlighted how hemophilia and sickle cell disease offer important lessons about the future of gene therapy access. Although both conditions qualify only […]
Ontario Opens Access Pathway for Hemophilia B Gene Therapy
Ontario has approved access to HEMGENIX, the first gene therapy for people with hemophilia B. British Columbia has also opened access, while other provinces continue their reviews. Because HEMGENIX is […]
Why Hemophilia B Is Known as Christmas Disease
An explainer from CSL examines why hemophilia B came to be known as Christmas disease, a name rooted in medical history rather than the holiday itself. The condition was first […]
Study Explores Quality of Life Challenges for Children with Hemophilia
A recent study highlighted in Hematology Advisor explores how hemophilia impacts health related quality of life in children, focusing on both physical symptoms and broader emotional and social effects. While […]
Hemophilia Found to Be Far More Common Than Previously Estimated
A 2019 study led by McMaster University revealed that hemophilia is about three times more prevalent than previously estimated, affecting more than 1.1 million men worldwide. Many cases remain undiagnosed, […]
What Hemophilia Ontario Gave Me That I Didn’t Know I Needed – Omar’s Story
I am a hemophiliac. I say that plainly, because for a long time I couldn’t. For years, my bleeding disorder was something I wanted to neglect. I hated what it […]
