The Flow Talk Series – Check it Out!

The Flow – A Heroixx Talk Series!

The Flow is a female focused podcast presented by Heroixx and in partnership with Hemophilia Ontario. It was created to help lead the revolution in women’s bleeding disorder care by putting their voices at the forefront, educating through guest speaker talks and patients’ lived experiences.

Covering topics that concern all women, The Flow supports and advocates for women living both with and without bleeding disorders. This space has been intentionally created to be welcoming and safe for everyone, regardless of their gender identity or their reason for listening. The Flow is currently available on Apple podcasts and Spotify.

 


DO YOU WANT TO BE FAMOUS? CASTING: PEOPLE WITH HEMOPHILIA

 

GENUINE (www.genuinerealpeople.com) is looking for people who have been diagnosed with HEMOPHILIA by a Healthcare Professional. Especially those who are ages 18-25!

Those who are selected for the final project will be paid $400 for the photo session and $2,000 for usage.  You must be able to get to, and available to attend the project shoot date on July 12th in Toronto.  Travel with a valid passport will be required.

THINK YOU HAVE WHAT IT TAKES?

SUBMIT YOUR APPLICATION ASAP via this link

QUESTIONS? Email casting@genuine​rp.com

 


Launching Today! New Website for Women with Bleeding Disorders!

 

Hemophilia Ontario has committed to placing its focus on women living with bleeding disorders. We are excited to announce the launch of Heroixx  as a result of this commitment.

Heroixx is a website that is a welcome space for everyone. This has been intentionally designed as an inclusive space for advocacy and education for women living with bleeding disorders.

The website is rich in resources including:

  • FAQs with leading researchers
  • Talk series
  • Events
  • Clinics
  • Posts
  • And much more!

Let us know what you think!


Happy World Hemophilia Day!

Since 1989, the 17th of April has been celebrated as World Hemophilia Day, also honouring the birth anniversary of Frank Schnabel, the founder of the World Federation of Hemophilia!

Let April 17th be a reminder to continue to celebrate every individual with a bleeding disorder and the strength they possess. By raising awareness about hemophilia globally and advocating for treatment and sustainable care, we can all #breakthestigma attached to having a bleeding disorder and fight for more effective and accessible treatment.

The theme for this year’s WHD is: ‘Access for All: Partnership. Policy. Progress. Engaging your government, integrating inherited bleeding disorders into national policy.’

“By raising awareness and bringing hemophilia and other inherited bleeding disorders to the attention of policymakers, we can increase sustainable and equitable access to care and treatment.” – World Federation of Hemophilia, 2022

 

 


Hemophilia Ontario All Product Review & Physician Panel

 

When: Wednesday April 27, 6:30-8:00pm EST

Review and comparison of current and future therapies for people with bleeding disorders including:

Standard and extended half-life products (recombinant and plasma), subcutaneous treatments, gene therapy, and more!

Don’t miss your chance! This session is exclusive to people with bleeding disorders and their families and will NOT include any industry representatives, and will NOT be recorded.

Please join us for Hemophilia Ontario’s product comparison and physician panel session. The webinar will feature a presentation and review of current and future therapies for people with bleeding disorders, followed by a discussion panel with clinic haematologists from Ontario. David Page, National Director of Health Policy at the Canadian Hemophilia Society, will be presenting the product comparison and will be joined by our expert panel of eminent haematologists in the bleeding disorders community.

Dr.Jerry Teitel, St.Michael’s Hospital, Toronto
Dr.Robert Klaassen, Children’s Hospital of Eastern Ontario, Ottawa
Dr.Manuel Carcao, Sick Kids Hospital, Toronto

Looking forward to seeing you all there!

Register here

 

 


Welcome Adura!

We’re very excited to announce the first of two new Student Social Media Coordinators at Hemophilia Ontario. Please join us in welcoming Adura Segun-Akintayo to our team!

 

Adura is a post-graduate student at Humber College, where she is working towards a graduate certificate in Addictions and Mental Health.

 

Prior to her move to Canada, Adura graduated with a BSc in Psychology and Cognitive Neuroscience from the University of Essex in England.

 

Driven by a desire to advocate for communities in need, her work experiences have involved support work for adults with disabilities, social media marketing and fundraising.

 

“I’ve always wanted to be passionate about the work that I do, which is why I am excited to work with Hemophilia Ontario. The opportunity to advocate for the awareness of bleeding disorders using my health background and social media experience feels incredible.”

 

Outside of the work environment, Adura is enthusiastic about ballet, meeting up with friends for food, and interior design.

 


Facebook Live with Reader’s Digest

Join us for a Facebook Live with Reader’s Digest, Lisa Thibeault, and Sidney Hryciuk on Thursday April 14th at 1pm EST.

 

To view the Facebook Live event, head to the Reader’s Digest Facebook page (@readersdigestcanada) and the live event will appear as a post in the timeline. It will appear at the beginning of the posts/top of the page at 1pm.

 

If you miss the live chat, you can again visit the Facebook page at a later time (@readersdigestcanada) and click on ‘Videos’ to view the chat/video.

 


Welcome Ravinder!

We’re really excited to announce the second of two new Student Social Media Coordinators at Hemophilia Ontario. Please join us in welcoming Ravinder Hans to our team!

 

Ravinder is an undergraduate student at Western University where she is completing her degree in Psychology. She was inspired to join Hemophilia Ontario as a Student Social Media Coordinator because she saw this as the ideal opportunity to merge her background in science with her passion for the art of communications.

 

Her past work experience has involved communications, social media marketing, and graphic design for not-for-profit organizations. She is looking forward to using her knowledge, skill, and experience to advocate for people with inherited bleeding disorders on Hemophilia Ontario’s social media platforms.

 

Outside the scope of work, Ravinder enjoys yoga, illustration, and learning new languages.