December 17, 2021 / By Michele Carroll
The first generation of people with hemophilia to live past 50 are aging in a world that doesn’t know what to do with them.
“I wasn’t expecting to be alive past 12, then 15, then 35-ish, and now I’m a fluffy 50 and having to deal with a system that’s not ready for me,” said Bobby Wiseman, who has severe hemophilia and is HIV-positive. “We weren’t supposed to get old.”
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