Our structure

Hemophilia Ontario strives to provide service and information in all parts of the province. There are five active regional offices each with their own Board of Directors.

Each regional Board sends delegates to the Hemophilia Ontario Board of Directors to form a single provincial Board. They meet three times a year, on average, to hear reports from committees and to approve new policy. The majority of the work of the organization is done through volunteer committees.

Volunteer Committees

Executive 

Acts for the Board of Directors in deciding organizaional positions on current issues.

Administration/Finance

Reviews the financial statements of the organization and recommends overall administrative policy.

Hemophilia Services

Reviews and makes recommendations regarding legislation or practices affecting the quality of care to people with hemophilia or related blood conditions.

Advocates on behalf of the community for provincial standards at the Comprehensive Care Programs across the province.

AIDS

Advisory Reviews and makes recommendations regarding legislation and services to people living with HIV and/or AIDS. Advocates on behalf of hemophiliacs and people with related blood conditions infected with HIV through the blood supply.

Hepatitis C Task Force

Established this year to determine Hemophilia Ontario's response and advocacy positions regarding the infection of over 70% of the community with the Hepatitis C virus.

Camp

Plans and sets policy for a children's camp held every summer where kids with hemophilia learn about hemophilia self-care and just have plain fun!

Canoe Trip

Plans and organizes a canoe trip for approximately ten hemophiliacs and people with related blood conditions over the age of fifteen.

Retreats

A variety of committees which organize retreats for men, women, youth and couples who have been infected with HIV through the blood supply and their families and partners.

Ontario Youth Committee

Ontario Events and Member Services

Dr. Peter McClure

Educational Fund Provides funding through scholarships to people with hemophilia and related blood conditions to advance their education.

AIDS Support and Education Program

Through funding from the AIDS Bureau of the Ministry of Health, Hemophilia Ontario delivers the following services to hemophiliacs and people with related blood conditions across the province:

• information on HIV/AIDS, hemophilia and services available to individuals in their regions.

• support groups and contact to other agencies.

• one-on-one advocacy support.

• active support to the Regional Boards of Directors to enhance volunteer participation.

• coordination of regional family retreats where information sessions on hemophilia care and issues affecting the lives of people with hemophilia and related blood conditions are presented to the local membership.